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Scott Price

The Spina Bifida Association

The mission of the Spina Bifida Association ® (SBA) is to promote the prevention of Spina Bifida and to enhance the lives of all affected.  Since 1973, SBA has been the only national voluntary health agency dedicated to preventing Spina Bifida in future generations and improving the lives of those affected by Spina Bifida through education, advocacy, research, and service.

SBA has a presence in more than 125 communities nationwide and touches thousands of people each year.  Lives are changed by the programs SBA has created, the services the organization provides, and the gains achieved through its advocacy efforts.

Spina Bifida Risk Groups

Scott Price, President of Spina Bifida Foundation, identifies potential risk groups for spina bifida.

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Scott Price: Hello! I am Scott Price, President of the Spina Bifida Foundation. I serve as a National Advocate for spina bifida related issues. And I am also the proud father of an adult son, who lives with spina bifida.

Spina bifida is a neural tube defect, which occurs when a new born babies spinal column fails to close completely. Within the first 28 days of pregnancy, usually before a woman is even aware that she is pregnant. A neural plate is formed and as it rolls up to form, the spinal column for some reason, that still not understood, an opening forms along the two. This opening, this open spine is spina bifida.

No two cases, are exactly the same. But in general those affected by spina bifida, usually experience significant paralysis and mobility problems, bowel and bladder difficulties and some may develop, latex allergy, obesity, skin breakdowns, gastrointestinal disorders, learning disabilities and depression.

Approximately 90% of those with the most challenging form of spina bifida also face life threatening hydrocephalus. Hydrocephalus resolves when the excess spinal fluid that was free floating before the open spine was closed begins to press on the brain, which can cause brain damage, retardation or even death. Wonderfully a shunt may be implanted in the brain, which drains the fluid off. But this shunt that's remain in place for a life and may require repeated surgical revisions.

The cause of spina bifida is not yet known, but we are working on it. Scientist believe that there may be a genetic predisposition and possibly some type of environmental trigger. Think about this. There are about 65 million, women of child bearing age in our country and all of them are at risk for a spina bifida affected pregnancy.

In the next segment, we will consider the various types of spina bifida and how they are diagnosed.

Living with Spina Bifida

Living with Spina Bifida

How Living with Spina Bifida has Changed Over the Years

How Living with Spina Bifida has Changed Over the Years

The Challenges of Living with Spina Bifida

The Challenges of Living with Spina Bifida

Support Mechanisms for People Living with Spina Bifida

Support Mechanisms for People Living with Spina Bifida

Advice for People Living With Spina Bifida

Advice for People Living With Spina Bifida

Important Spina Bifida Information

Important Spina Bifida Information

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