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Scott Price

The Spina Bifida Association

The mission of the Spina Bifida Association ® (SBA) is to promote the prevention of Spina Bifida and to enhance the lives of all affected.  Since 1973, SBA has been the only national voluntary health agency dedicated to preventing Spina Bifida in future generations and improving the lives of those affected by Spina Bifida through education, advocacy, research, and service.

SBA has a presence in more than 125 communities nationwide and touches thousands of people each year.  Lives are changed by the programs SBA has created, the services the organization provides, and the gains achieved through its advocacy efforts.

Non-medical treatments for Spina Bifida

Scott Price, President of Spina Bifida Foundation, discusses non-medical treatment options for spina bifida.

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Scott Price: Hello! I am Scott Price, President of the Spina Bifida Foundation. I serve as a National Advocate for Spina Bifida related issues, and I am also the proud father of an adult son, who lives with Spina Bifida.

Today, thanks to medical advances. About 90% of children born with Spina Bifida, live to be adults, nearly 80% have normal intelligence and 75% are able to play sports and participate in other recreational activity. These are especially encouraging statistics for a community in which 40 years ago, very few children with spina bifida survived into adulthood.

Recent research, into spina bifida treatment and care has begun to address some of the more common social and mental challenges such as learning disabilities and depression. Interventions such as an individualized educational plan or physical or recreational therapy, or support group discussions can help to mange these issues.

If you are the parent of the child with spina bifida, I encourage you to contact your local Spina Bifida Association chapter to tap in to the valuable support, that's available for both you and your child.

In the next segment, we'll consider how you might minimize the risk of having a spina bifida affected pregnancy.

my son by janice_ray at 11/29/10 09:20PM Flag

I have a one week old son that has spina bifida. He can move his hips very well; but the doctors say that he may only walk with braces for a short time. Is there any surgery that can be done to increase his chances of walking? Please email me if you have answers. Hottcrimsonangel@yahooo.com

my daughter has spina bifida by jcc100506 at 08/24/10 08:09PM Flag

my daughter has spina bifida.. and when i found out the doctors only told me about the bad stuff and how childern with spina bifida do not live to be adults.. and that was hard to hear as a mother. But now with all the new reserach. i know that she will be ok. and live a long and filling live. she is a very strong and demanding baby. but i am think for websites like monkey see and others that help me stay on top of spina bifida i just hope that they will con. finding out about it thanks chelsea

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