Important Spina Bifida Information

Important Spina Bifida Information

Understanding Spina Bifida

Understanding Spina Bifida

Important Spina Bifida Information

Important Spina Bifida Information

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Scott Price

The Spina Bifida Association

The mission of the Spina Bifida Association ® (SBA) is to promote the prevention of Spina Bifida and to enhance the lives of all affected.  Since 1973, SBA has been the only national voluntary health agency dedicated to preventing Spina Bifida in future generations and improving the lives of those affected by Spina Bifida through education, advocacy, research, and service.

SBA has a presence in more than 125 communities nationwide and touches thousands of people each year.  Lives are changed by the programs SBA has created, the services the organization provides, and the gains achieved through its advocacy efforts.

Important Spina Bifida Information

Scott Price, from the Spina Bifida Association, discusses Spina Bifida prevention and ways to test for it during pregnancy.

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Scott Price: Spina bifida is the most commonly occurring, permanently disabling birth defect in this country. It's a neural tube defect which occurs when a new born baby's spinal canal fails to close completely.

Spina bifida can result in a life time of unique challenges such as significant paralysis and mobility problems, bowel and bladder difficulties among other issues.

The cause of Spina bifida is not yet known and therefore each of the 65 million women of child-bearing age in this country is at risk for Spina bifida affected pregnancy.

There are three tests that can be used to diagnose Spina bifida. The first is a blood test between the 16th and 18th week of pregnancy. The second method is an ultrasound. And the final method of test is maternal amniocentesis.

The good news is that research has shown that daily intake of 400 micrograms of folic acid can reduce the risk by upto 70%, because Spina bifida occurs within the first 28 days after conception; often before a woman is even aware that she is pregnant.

The Spina Bifida Association urges all women of child-bearing age to take a daily multivitamin containing folic acid.

Understanding Spina Bifida

Understanding Spina Bifida

Spina Bifida Risk Groups

Spina Bifida Risk Groups

Diagnosing Spina Bifida

Diagnosing Spina Bifida

Spina Bifida Treatment

Spina Bifida Treatment

Non-medical treatments for Spina Bifida

Non-medical treatments for Spina Bifida

  	Minimizing the Risk of Having a Spina Bifida-Affected Pregnancy

Minimizing the Risk of Having a Spina Bifida-Affected Pregnancy

Advances in Spina Bifida Research

Advances in Spina Bifida Research

Living with Spina Bifida

Living with Spina Bifida

How Living with Spina Bifida has Changed Over the Years

How Living with Spina Bifida has Changed Over the Years

The Challenges of Living with Spina Bifida

The Challenges of Living with Spina Bifida